the 11th chromosome and 11,000 other things

the 11th chromosome and 11,000 other things

About the blog

the 11th chromosome is probably an insignificant chromosome, but it influences the lives of thousands of people. This blog is how to live successfully with a certain damage in the 11th chromosome, but also the other 11,000 things that life is all about.

Life is the Greatest Success

the 11th chromosomePosted by Lamaro Schoenleber Thu, June 25, 2015 21:02:02

One of the things I started to think about as I started to reflect more on sickle cell anemia and how to live with it, is how we measure success.

In a world where we all live by different value systems, everyone measures success in different ways - money, possessions, career success, family happiness, or fame and fortune.

For a sickler, life's greatest success is life itself.

The greatest measure of success for a sickler is one's own life - the fact that one is still alive.

Sickle cell anemia is a disease that kills its sufferers very young: before the age of five, between the ages of 9 and 10, in the mid-teenage years, between the ages of 18 and 19, at around the age of 22-23 and at the age of 25-26.

Whoever survives this first quarter of a century might usually live decidely longer. But sicklers in their middle-age are still are minority.

So, when I wake up in the morning, I am first of all glad and grateful that I am still alive, before I count my money (or my debts), or my achievements (or lack thereof), or my blessings.

And should I get forget to be thankful, as I often do, there are enough people to remind me. (Recently, my sister's friend remarked to her, somewhat astonished:"Your sister, she is still alive, isn't she ???!!!)

Which, in my considered opinion, is not a bad thing. Maybe what we should all always remember - first and foremost - is that being alive at all, is the greatest success of all.

And since we could not do it without divine help, we should be thankful. And a life well-lived is long enough.

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