the 11th chromosome and 11,000 other things

the 11th chromosome and 11,000 other things

About the blog

the 11th chromosome is probably an insignificant chromosome, but it influences the lives of thousands of people. This blog is how to live successfully with a certain damage in the 11th chromosome, but also the other 11,000 things that life is all about.

Death of an Unknown Girl

the 11th chromosomePosted by Lamaro Schoenleber Thu, June 25, 2015 00:12:42

I felt unusually bereft and deeply saddened by this death. It brought home to me the full tragedy of the millions of sickle-cell sufferers who quietly lost their fights everyday - some despite having invested a lot of effort, emotion and education into living a normal life.

I myself had reached an age with my sickle cell anemia, where every doctor or specialist I went to told me, 'You are mid-way through your fourth decade - what more do you expect?'

Implying that there was no more that science could do for me - I had reached and surpassed the prescribed life expectancy of a sickler. I was living in extra time.

It had never really bothered me what the doctors had said, but when I started reading more about what other people had to say about sickle cell anemia and life with sickle cell anemia, and noticed that in most online forums, there were maybe two or three participants as old as I was or older, that got me thinking.

That and the death of the unknown girl.

And one of the things that got me thinking was that there are a lot of positive things to say about sickle cell anemia and living with it, not just negative ones.

Everyone could learn something from every adult sickler who is still alive.

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